MS chronic disease thread

[sgluckadoo]

Any MS folks out there who want to share?

[Delphyne]

I have SPMS (Secondary progressive ms).  Happy to see this thread.  I am currently controlling (or attempting to control) my symptoms using natural means. 

I also have epilepsy.

The medications I was on made me violently ill.  I was jaundiced and vomiting blood. 

In the past year, I completely changed my eating habits, and starting using herbal (plant) remedies.  One of the biggest helps I have had is diet.  After several months of the diet change I noticed that the trigeminal neuralgia I have as a result of MS does not hurt half as bad as it did.  I do not get the MS hug like I once did. 

My seizures are better controlled with diet.

Nothing is a cure, and I am still struggling.  The changes have slowed things down, and that is all.  I still have some terrible days. 


 

[sgluckadoo]

I have SPMS (Secondary progressive ms).  Happy to see this thread.  I am currently controlling (or attempting to control) my symptoms using natural means. 

I also have epilepsy.

The medications I was on made me violently ill.  I was jaundiced and vomiting blood. 

In the past year, I completely changed my eating habits, and starting using herbal (plant) remedies.  One of the biggest helps I have had is diet.  After several months of the diet change I noticed that the trigeminal neuralgia I have as a result of MS does not hurt half as bad as it did.  I do not get the MS hug like I once did. 

My seizures are better controlled with diet.

Nothing is a cure, and I am still struggling.  The changes have slowed things down, and that is all.  I still have some terrible days. 


 

Glad you have had some help through diet changes. I take an interferon drug and it seems to help the MS but the side effects are pretty rough. Every sat. night i take the shot and then feel like i have the flu all night and all day sunday. I have to do it on the weekend so that i can work.

I struggle with regulating body temp. I can be burning up one sec and freezing the next any time of year. I seem to overheat very easily and then feel weak and sluggish.

I have not had the MS hug but have heard of it. I am battling optic neuritis right now.

[g0ku4life]

I can't imagine going through a disease like that. You guys have my respect for coping with it on a daily basis

[sgluckadoo]

I can't imagine going through a disease like that. You guys have my respect for coping with it on a daily basis

Much appreciated. I wouldnt wish it on anyone.

[Delphyne]

I have SPMS (Secondary progressive ms).  Happy to see this thread.  I am currently controlling (or attempting to control) my symptoms using natural means. 

I also have epilepsy.

The medications I was on made me violently ill.  I was jaundiced and vomiting blood. 

In the past year, I completely changed my eating habits, and starting using herbal (plant) remedies.  One of the biggest helps I have had is diet.  After several months of the diet change I noticed that the trigeminal neuralgia I have as a result of MS does not hurt half as bad as it did.  I do not get the MS hug like I once did. 

My seizures are better controlled with diet.

Nothing is a cure, and I am still struggling.  The changes have slowed things down, and that is all.  I still have some terrible days. 


 

Glad you have had some help through diet changes. I take an interferon drug and it seems to help the MS but the side effects are pretty rough. Every sat. night i take the shot and then feel like i have the flu all night and all day sunday. I have to do it on the weekend so that i can work.

I struggle with regulating body temp. I can be burning up one sec and freezing the next any time of year. I seem to overheat very easily and then feel weak and sluggish.

I have not had the MS hug but have heard of it. I am battling optic neuritis right now.

I have Optic Neuritis, too, and Trigeminal Neuralgia on both sides of my face.  Optic Neuritis for me comes and goes.  One minute I could be fine, the next minute it feels like I have knives in my eyes.  But not my eyes, behind my eyes. 

The tragically said part of it all is that I thought most of my symptoms were normal for years.  That everyone went through what I went through and just toughed it out.  So I never said a word....until the TN hit.  After two weeks of full blown bilateral TN, I had to go to the doctor.  Facial pain is intense and unforgiving. 

I am glad you started this topic.  I can whine without feeling alone. 


 

[Delphyne]

I can't imagine going through a disease like that. You guys have my respect for coping with it on a daily basis

Thank you.  Most people have treated me very poorly.  My husband, I believe, has saved my life. 


 

[sgluckadoo]

I have SPMS (Secondary progressive ms).  Happy to see this thread.  I am currently controlling (or attempting to control) my symptoms using natural means. 

I also have epilepsy.

The medications I was on made me violently ill.  I was jaundiced and vomiting blood. 

In the past year, I completely changed my eating habits, and starting using herbal (plant) remedies.  One of the biggest helps I have had is diet.  After several months of the diet change I noticed that the trigeminal neuralgia I have as a result of MS does not hurt half as bad as it did.  I do not get the MS hug like I once did. 

My seizures are better controlled with diet.

Nothing is a cure, and I am still struggling.  The changes have slowed things down, and that is all.  I still have some terrible days. 


 

Glad you have had some help through diet changes. I take an interferon drug and it seems to help the MS but the side effects are pretty rough. Every sat. night i take the shot and then feel like i have the flu all night and all day sunday. I have to do it on the weekend so that i can work.

I struggle with regulating body temp. I can be burning up one sec and freezing the next any time of year. I seem to overheat very easily and then feel weak and sluggish.

I have not had the MS hug but have heard of it. I am battling optic neuritis right now.

I have Optic Neuritis, too, and Trigeminal Neuralgia on both sides of my face.  Optic Neuritis for me comes and goes.  One minute I could be fine, the next minute it feels like I have knives in my eyes.  But not my eyes, behind my eyes. 

The tragically said part of it all is that I thought most of my symptoms were normal for years.  That everyone went through what I went through and just toughed it out.  So I never said a word....until the TN hit.  After two weeks of full blown bilateral TN, I had to go to the doctor.  Facial pain is intense and unforgiving. 

I am glad you started this topic.  I can whine without feeling alone. 


 

I hear you about it coming and going. so frustrating, and no one understands.

I was diagnosed back in 2005 at 24 years old, just after college. I had been going to doc after doc with odd symptoms. The docs made me feel like i was crazy or making it up. It wasnt until the optic neuritis showed up that they figured out it was MS. it had been attacking my C-spine which no one ever scanned. they always scanned my brain and found nothing, until the optic neuritis.

i have not had TN but hear it is beyond excruciating. I am sorry you have that pain to deal with.

[Delphyne]

Honestly, after everything my family has gone through with doctors, I would like to give most of them a good swift kick to the jimmy.

I mentioned before that I am on the Ketogenic diet.  I have noticed a dramatic improvement in the facial pain and Optic Neuritis.  I still get both, but I have not had to get morphine for it in a long, long time.  For that, I am thankful.

 

[moonangel]

Honestly, after everything my family has gone through with doctors, I would like to give most of them a good swift kick to the jimmy.

I mentioned before that I am on the Ketogenic diet.  I have noticed a dramatic improvement in the facial pain and Optic Neuritis.  I still get both, but I have not had to get morphine for it in a long, long time.  For that, I am thankful.

 
[/quote   i would love to find natural cures that would work for my wife  she would really like to get off of some or all of her medications if any one could help her it would really be great

[Delphyne]

Moonangel, does your wife have MS?  If she does, what type of MS does she have?  What medications is she on?  What are her primary symptoms.  I would gladly help you, if my assistance would help.

I was in school for Psychology, and was going to go Pre-med, but I had a few nasty seizures which caused extensive damage to my brain's limbic system.  Unfortunately, I had to leave school temporarily.  If all goes well, I will return in the fall.

Among the many things I study, the human body is one of them.  I study plants, physics, geology, and a number of other scientific disciplines.  Let me know.

[gbabesmom]

I was diagnosed with relapsing remitting ms in 2005. I've been lucky to never have optic neuritis or face pain. I have weakness in my legs and hips along with balance issues. I found exercise helps a lot. I take Copaxone. For me a shot everyday is  . But it has no bad side effects and I can give myself a shot and do whatever I want. Hugs to all of you.

[gaylasue]

I have been diagnosed with pre-MS.  I have 4 legions in the brain and have frequent episodes with optic neuritis.  We have a very good friend who is in the latter stages of MS.  My brother-in-law's mother died from MS conditions.

[sgluckadoo]

I was diagnosed with relapsing remitting ms in 2005. I've been lucky to never have optic neuritis or face pain. I have weakness in my legs and hips along with balance issues. I found exercise helps a lot. I take Copaxone. For me a shot everyday is  . But it has no bad side effects and I can give myself a shot and do whatever I want. Hugs to all of you.

Have you tried meds other than copaxone? I have never been on that one. I take avonex and hate the flu like symptoms every weekend.

[sgluckadoo]

I have been diagnosed with pre-MS.  I have 4 legions in the brain and have frequent episodes with optic neuritis.  We have a very good friend who is in the latter stages of MS.  My brother-in-law's mother died from MS conditions.

I didnt even know there was a pre-ms, learn something new everyday! Its amazing how many people have this disease.