MS chronic disease thread

[gbabesmom]

I was diagnosed with relapsing remitting ms in 2005. I've been lucky to never have optic neuritis or face pain. I have weakness in my legs and hips along with balance issues. I found exercise helps a lot. I take Copaxone. For me a shot everyday is  . But it has no bad side effects and I can give myself a shot and do whatever I want. Hugs to all of you.

Have you tried meds other than copaxone? I have never been on that one. I take avonex and hate the flu like symptoms every weekend.

I took Tysabri last year but I didn't go past year one and I'm JC virus positive. I started on Copaxone in 2005 and was off and on it. My doctor wanted me to try Tysabri because it's monthly. I did well on it. I decided to go back on Copaxone so I could do it at home. The only side effect is skin irritation like a bug bite. No flu symptoms. I'm really hoping BG 12 gets out soon. 

[sgluckadoo]

I was diagnosed with relapsing remitting ms in 2005. I've been lucky to never have optic neuritis or face pain. I have weakness in my legs and hips along with balance issues. I found exercise helps a lot. I take Copaxone. For me a shot everyday is  . But it has no bad side effects and I can give myself a shot and do whatever I want. Hugs to all of you.

Have you tried meds other than copaxone? I have never been on that one. I take avonex and hate the flu like symptoms every weekend.

I took Tysabri last year but I didn't go past year one and I'm JC virus positive. I started on Copaxone in 2005 and was off and on it. My doctor wanted me to try Tysabri because it's monthly. I did well on it. I decided to go back on Copaxone so I could do it at home. The only side effect is skin irritation like a bug bite. No flu symptoms. I'm really hoping BG 12 gets out soon. 

I read that 80-90% of people are JC positive, something from childhood exposure. So i dont see why tysabri is even used, i mean i know it works wonders, but if only 10% of people can safely take it how does that really help ms patients?  im just so tired of living with ms and there are so many trial and error meds. it is beyond time for a cure. sigh

[squirrelgirl44]

I was diagnosed with MS in 2004. I opted to treat "naturally" and I have some minor symptoms but nothing too bad yet. Sometimes I think the medicines and treatments are just a way to get more money. It's been over 8 years since I was diagnosed and I have only had a few trips to the dr, nothing major.

[de3ik]

I wish the best to all of the MS sufferers on this thread and elsewhere. Your struggle requires much grace and My prayers are with you.

My pastor's wife has MS and it almost took her life. She said she took on foster parenting to give her something to focus on that was positive. It really helped her and she adores the foster children. She has taken in over 20 in nearly 20 years. Her health struggles at times, but she is doing quite well and we were happy for her.

May God bless you all in your battle against MS. 

[Delphyne]

I was diagnosed with MS in 2004. I opted to treat "naturally" and I have some minor symptoms but nothing too bad yet. Sometimes I think the medicines and treatments are just a way to get more money. It's been over 8 years since I was diagnosed and I have only had a few trips to the dr, nothing major.

I am treating naturally, as well.  My symptoms are much less than what they were when I was on medications.  I believe the same way you do -- medicines and treatments are just a money making scam.  I know more people who derive benefit from natural remedies and dietary changes than the medications they were on.

[gbabesmom]

I was diagnosed with relapsing remitting ms in 2005. I've been lucky to never have optic neuritis or face pain. I have weakness in my legs and hips along with balance issues. I found exercise helps a lot. I take Copaxone. For me a shot everyday is  . But it has no bad side effects and I can give myself a shot and do whatever I want. Hugs to all of you.

Have you tried meds other than copaxone? I have never been on that one. I take avonex and hate the flu like symptoms every weekend.

I took Tysabri last year but I didn't go past year one and I'm JC virus positive. I started on Copaxone in 2005 and was off and on it. My doctor wanted me to try Tysabri because it's monthly. I did well on it. I decided to go back on Copaxone so I could do it at home. The only side effect is skin irritation like a bug bite. No flu symptoms. I'm really hoping BG 12 gets out soon. 

I read that 80-90% of people are JC positive, something from childhood exposure. So i dont see why tysabri is even used, i mean i know it works wonders, but if only 10% of people can safely take it how does that really help ms patients?  im just so tired of living with ms and there are so many trial and error meds. it is beyond time for a cure. sigh

Oh I know what you mean. A fellow MSer told me the other day she wonders what neurologists do all day. I just keep faith in God. That keeps me going better than any drug I could get from my doctor.

[Delphyne]

I wish the best to all of the MS sufferers on this thread and elsewhere. Your struggle requires much grace and My prayers are with you.

My pastor's wife has MS and it almost took her life. She said she took on foster parenting to give her something to focus on that was positive. It really helped her and she adores the foster children. She has taken in over 20 in nearly 20 years. Her health struggles at times, but she is doing quite well and we were happy for her.

May God bless you all in your battle against MS. 

Thank you for these kind words.    It is a struggle, but remaining positive, laughing as much as possible, and having healthy food to eat is a huge help.